DIGITAL LEARNING FOR AUTISM SPECTRUM DISORDER (ASD) STUDENTS: THE DIFFICULTIES PARENTS ENCOUNTER

Abstract

This study aims to explore the problems parents face when introducing digital learning into the education of their children with autism spectrum disorder (ASD). The research niche addresses the intersection of digital learning platforms and the unique needs of ASD students, while specifically focussing on the issues reported by parents who are trying to take an active part in their children’s studies.  A total of 112 parents participated in this study, providing their opinions through a Google Form questionnaire. Data were analysed using SPSS 29 to identify key issues like accessing technology, understanding and using digital tools, supporting children's engagement and motivation, time management, and balancing other responsibilities. The key takeaways of the study reveal that parents face significant challenges while selecting appropriate tools, ensuring compatibility with their child's needs, and managing the appropriate screen time. In conclusion, these difficulties demand an ongoing effort throughout the design, training, and assistance provided for parents to incorporate digital learning into their children’s education successfully. The key to this success seems to be for teachers, developers, and families to work together to maximise the chance for digital learning to become a breakthrough success for ASD students.

Keywords: Autism spectrum disorder, digital learning, parents, difficulties, parental challenges.

REFERENCES

Abusini, B. S., Abulibdeh, E., Alghazo, E. M., & Abulibdeh, A. (2023, November). Augmented Reality: A Game-Changer for Pre-Service Teacher Preparation. In 2023 Tenth International Conference on Social Networks Analysis, Management and Security (SNAMS) (pp. 1-9). IEEE.

Aidonopoulou‐Read, T. (2020). The conceptualisation of a modified formative assessment model for non‐verbal students with autism and severe learning difficulties. British Journal of Special Education, 47(1), 88-109. doi:10.1111/1467-8578.12290

Alharbi, B. A., Ibrahem, U. M., Moussa, M. A., Alrashidy, M. A., & Saleh, S. F. (2023). Parents’ digital skills and their development in the context of the Corona pandemic. Humanities and Social Sciences Communications, 10(1), 1-10. doi:10.1057/s41599-023-01556-7

Almurashi, H., Bouaziz, R., Alharthi, W., Al-Sarem, M., Hadwan, M., & Kammoun, S. (2022). Augmented reality, serious games and picture exchange communication system for people with ASD: Systematic literature review and future directions. Sensors, 22(3), 1250. doi:10.3390/s22031250

Alqudah, H., & Khasawneh, M. A. S. (2024). Assessing cognitive flexibility: quantitative insights into the impact of adaptive learning technologies in special education. International Journal of Data and Network Science, 8(3), 1463–1470. doi:10.5267/j.ijdns.2024.3.019

Alshaboul, Y. M., Alazaizeh, M. A., Sellami, A. L., Abu-Tineh, A. M., Ghamrawi, N., & Shal, T. (2024). The perceived challenges to online learning during the COVID-19 pandemic: A nationwide study of K-12 parental perspectives (Arab and other parents) in Qatar. Heliyon, 10(7), e28578. doi:1016/j.heliyon.2024.e28578

Alshammarı, S. H. (2020). The influence of technical support, perceived self-efficacy, and instructional design on students’use of learning management systems. Turkish Online Journal of Distance Education, 21(3), 112-141. doi:10.17718/tojde.762034

American Psychiatric Association (APA) (2013). Diagnostic and statistical manual of mental disorders (DSM-V). 5^th Edition, American Psychiatric Publishing, Washington DC.

Auxier, B., Anderson, M., Perrin, A., & Turner, E. (2020, July 28). Parenting approaches and concerns related to digital devices. Pew Research Center: Internet, Science & Tech. Retrieved from: https://www.pewresearch.org/internet/2020/07/28/parenting-approaches-and-concerns-related-to-digital-devices/

Aykut, P., & Kahveci, G. (2024). The effect of conjoint behavioral consultation on achieving communication skills in children with autism spectrum disorder. International Journal of Developmental Neuroscience. doi:10.1002/jdn.10368   

Balasco, L., Provenzano, G., & Bozzi, Y. (2020). Sensory abnormalities in autism spectrum disorders: A focus on the tactile domain, from genetic mouse models to the clinic. Frontiers in psychiatry, 10, 1016. doi:10.3389/fpsyt.2019.01016   

Barua, P. D., Vicnesh, J., Gururajan, R., Oh, S. L., Palmer, E., Azizan, M. M., Kadri, N. A., & Acharya, U. R. (2022). Artificial intelligence enabled personalised assistive tools to enhance education of children with neurodevelopmental disorders—A review. International Journal of Environmental Research and Public Health, 19(3), 1192. doi:10.3390/ijerph19031192  

Blind, K., Böhm, M., Grzegorzewska, P., Katz, A., Muto, S., Pätsch, S., & Schubert, T. (2021). The impact of Open Source Software and Hardware on technological independence, competitiveness and innovation in the EU economy. Final Study Report. European Commission, Brussels, doi, 10, 430161. Study Report. Brussels

Bravo-Adasme, N., Cataldo, A. & Toledo, E.G. Techno-distress and parental burnout: The impact of home facilitating conditions and the system quality. Educ Inf Technol 28, 13619–13646 (2023). doi;10.1007/s10639-023-11767-9

Breitenstein, S. M., Shane, J., Julion, W., & Gross, D. (2015). Developing the eCPP: Adapting an evidence-based parent training program for digital delivery in primary care settings. Worldviews on Evidence-Based Nursing, 12(1), 31–40. doi:10.1111/wvn.12074

Brito, R., & Dias, P. (2020). “Which apps are good for my children?”: How the parents of young children select apps. International Journal of Child-Computer Interaction, 26, 100188. doi:10.1016/j.ijcci.2020.100188

Burrell, T. L., & Borrego, J. (2012). Parents’ involvement in asd treatment: What is their role?. Cognitive and Behavioral Practice, 19(3), 423–432. doi:10.1016/j.cbpra.2011.04.003   

Buteau-Poulin, A., Gosselin, C., Bergeron-Ouellet, A., Kiss, J., Lamontagne, M.-È., Maltais, D., Trottier, C., & Desmarais, C. (2020). Availability and quality of web resources for parents of children with disability: Content analysis and usability study. JMIR Pediatrics and Parenting, 3(2), e19669. doi:10.2196/19669

Cambini, C., Sabatino, L., & Zaccagni, S. (2024). The faster the better? Advanced internet access and student performance. Telecommunications Policy, 48(8), 102815–102815. doi:10.1016/j.telpol.2024.102815  

Chaidi, I., & Drigas, A. (2020). Parents' Involvement in the Education of their Children with Autism: Related Research and its Results. International Journal of Emerging Technologies in Learning (iJET), 15(14), 194-203. Kassel, Germany: International Journal of Emerging Technology in Learning. Retrieved from: https://www.learntechlib.org/p/217577/  

Charan, G. S., Kalia, R., Khurana, M. S., & Narang, G. S. (2024). From screens to sunshine: Rescuing children’s outdoor playtime in the digital era. Journal of Indian Association for Child and Adolescent Mental Health, 20(1), 11-17. Retrieved from:10.1177/09731342241229845       

Chiu, T. K. F. (2021). Digital support for student engagement in blended learning based on self-determination theory. Computers in Human Behavior, 124(106909), 106909. doi:10.1016/j.chb.2021.106909

Devaney, C., Christiansen, Ø., Holzer, J., MacDonald, M., Matias, M., & Salamon, E. (2022). Child, parent or family? Applying a systemic lens to the conceptualisations of Family Support in Europe. European Journal of Social Work, 26(2), 335–347. doi:10.1080/13691457.2022.2146308

Dumaru, P., Hackler, B. D., Flood, A., & Al-Ameen, M. N. (2024). “I feel like he’s looking in the computer world to be social, but I can’t trust his judgement”: Reimagining Parental Control for Children with ASD. In Proceedings of the CHI Conference on Human Factors in Computing Systems (pp. 1-25).

Fernández-Batanero, J. M., Montenegro-Rueda, M., Fernández-Cerero, J., & García-Martínez, I. (2020). Digital competences for teacher professional development. Systematic review. European Journal of Teacher Education, 45(4), 513–531. doi:10.1080/02619768.2020.1827389

Fitriani, H., Muslihat, A., & Tabroni, I (2023). Psychological dynamics of parents: Educational adaptations of children with special needs in schools and homes. International Journal of Integrative Sciences, 2(2), 97–108. doi:10.55927/ijis.v2i2.3090

Hammer, M., Scheiter, K., & Stürmer, K. (2021). New technology, new role of parents: How parents' beliefs and behavior affect students’ digital media self-efficacy. Computers in Human Behavior, 116, 106642. doi:10.1016/j.chb.2020.106642

Heyworth, M., Brett, S., Houting, J. den, Magiati, I., Steward, R., Urbanowicz, A., Stears, M., & Pellicano, E. (2021). “It just fits my needs better”: Autistic students and parents’ experiences of learning from home during the early phase of the COVID-19 pandemic. Autism & Developmental Language Impairments, 6. doi:10.1177/23969415211057681 

Hirota, T., & King, B. H. (2023). Autism spectrum disorder: a review. Jama, 329(2), 157-168. doi:10.1176/appi.books.9780890425596  

Jones, E. K., Hanley, M., & Riby, D. M. (2020). Distraction, distress and diversity: Exploring the impact of sensory processing differences on learning and school life for pupils with autism spectrum disorders. Research in Autism Spectrum Disorders, 72(72), 101515. doi:10.1016/j.rasd.2020.101515

Khoirunnisa, A.N., Munir, Dewi, L., Rasim, Azizah, N.N., Alivia, Z.P. (2024). The use of augmented reality, virtual reality, and mixed reality in communication children’s with ASD: Systematic literature review. In: Badioze Zaman, H., et al. Advances in Visual Informatics. IVIC 2023. Lecture Notes in Computer Science, vol 14322. Springer, Singapore. doi:10.1007/978-981-99-7339-2_16

Kiourexidou, M., Kanavos, A., Klouvidaki, M., & Antonopoulos, N. (2024). Exploring the role of user experience and interface design communication in augmented reality for education. Multimodal Technologies and Interaction, 8(6), 43. doi:10.3390/mti8060043

Knopik, T., Błaszczak, A., Maksymiuk, R., & Oszwa, U. (2021). Parental involvement in remote learning during the COVID-19 pandemic-Dominant approaches and their diverse implications. European journal of education, 56(4), 623–640. doi:10.1111/ejed.12474 

Laurie, M. H., Warreyn, P., Uriarte, B. V., Boonen, C., & Fletcher-Watson, S. (2019). An international survey of parental attitudes to technology use by their autistic children at home. Journal of autism and developmental disorders, 49(4), 1517–1530. doi:10.1007/s10803-018-3798-0

Lee, J. D., Terol, A. K., Yoon, C. D., & Meadan, H. (2024). Parent-to-parent support among parents of children with autism: A review of the literature. Autism, 28(2), 263-275. doi:10.1177/13623613221146444

Mallory, C., & Keehn, B. (2021). Implications of sensory processing and attentional differences associated with autism in academic settings: An integrative review. Frontiers in Psychiatry, 12(12). doi:10.3389/fpsyt.2021.695825

Mamas, C., Daly, A. J., Cohen, S. R., & Jones, G. (2021). Social participation of students with autism spectrum disorder in general education settings. Learning, Culture and Social Interaction, 28, 100467. https://doi.org/10.1016/j.lcsi.2020.100467   

Maryono, G. D., & Lengkanawati, N. S. (2022). EFL teachers’ strategies to accommodate students’ learning styles in distance learning and their challenges. Journal on English as a Foreign Language, 12(1), 159-178. doi:10.23971/jefl.v12i1.3130  

Michelson, R., DeWitt, A., Nagar, R., Hiniker, A., Yip, J., Munson, S. A., & Kientz, J. A. (2021). Parenting in a pandemic: Juggling multiple roles and managing technology use in family life during covid-19 in the United States. Proceedings of the ACM on Human-Computer Interaction, 5(CSCW2), 1–39. doi:/10.1145/3479546

Nepo, K. (2017). The use of technology to improve education. Child Youth Care Forum 46, 207–221. doi:10.1007/s10566-016-9386-6   

Rice, M. F., & Ortiz, K. (2021). Parents’ use of digital literacies to support their children with disabilities in online learning environments. Online Learning, 25(3). doi:10.24059/olj.v25i3.2407

Roberts-Yates, C., & Silvera-Tawil, D. (2019). Better education opportunities for students with autism and intellectual disabilities through digital technology, International Journal of Special Education, 34(1), 197-210.

Russell, S., & McCloskey, C. R. (2016). Parent perceptions of care received by children with an autism spectrum disorder. Journal of Pediatric Nursing, 31(1), 21-31. doi:10.1016/j.pedn.2015.11.002

Ruta-Sominka, I., & Budzińska, A. (2020). Using the application friendly schedule on a tablet to promote independence in children with autism spectrum disorder. International Journal of Research in E-Learning, 6(2), 1–18. doi:10.31261/ijrel.2020.6.2.07

Schofield, J. W. (2000). Increasing the generalizability of qualitative research. Case study method, 69-97.

Schwartz, L., Beamish, W., & McKay, L. (2021). Understanding social-emotional reciprocity in autism: Viewpoints shared by teachers. Australian Journal of Teacher Education (Online), 46(1), 24–38. https://search.informit.org/doi/10.3316/informit.749213159481754

Simelane-Mnisi, S. (2023). Effectiveness of LMS digital tools used by the academics to foster students’ engagement. Education Sciences, 13(10), 980. doi:10.3390/educsci13100980

Singh, A., & Seo, H. (2021). Atypical sensory functions and eating behaviors among adults on the autism spectrum: One‐on‐one interviews. Journal of Sensory Studies, 37(2). doi:10.1111/joss.12724

Skinner, B., Abbott, L., Taggart, S., & Hou, H. (2023). Working parents home-schooling children with special educational needs during a pandemic: How best can mainstream schools help through digital technologies?. Studies in Technology Enhanced Learning, 3(3), 1-21. Advance online publication. doi:10.21428/8c225f6e.3cd45dab

Smith, S. J., Burdette, P. J., Cheatham, G. A. & Harvey, S. P. (2016). Parental role and support for online learning of students with disabilities: A paradigm shift. Journal of Special Education Leadership, 29(2), 101-112. Retrieved September 6, 2024 from https://www.learntechlib.org/p/192624/

Soyoof, A., Reynolds, B. L., Neumann, M., Scull, J., Tour, E., & McLay, K. (2024). The impact of parent mediation on young children's home digital literacy practices and learning: A narrative review. Journal of Computer Assisted Learning, 40(1), 65-88. doi:10.1111/jcal.12866

Stantcheva, S. (2023). How to run surveys: A guide to creating your own identifying variation and revealing the invisible. Annual Review of Economics, 15(1). doi:10.1146/annurev-economics-091622-010157

Sturrock, A., Chilton, H., Foy, K., Freed, J., & Adams, C. (2021). In their own words: the impact of subtle language and communication difficulties as described by autistic girls and boys without intellectual disability. Autism, 26(2), 136236132110020. doi:10.1177/13623613211002047

Vairamani, A. D. (2024). Enhancing social skills development through augmented reality (ar) and virtual reality (vr) in special education. Augmented Reality and Virtual Reality in Special Education, 65-89. doi:10.1002/9781394167586.ch3

Wahyuanto, E., Heriyanto, H., & Hastuti, S. (2024). Study of the use of augmented reality technology in improving the learning experience in the classroom. West Science Social and Humanities Studies, 2(5), 700-705. h doi:10.58812/wsshs.v2i05.871

Wang, X., & Xing, W. (2022). Supporting youth with autism learning social competence: A comparison of game-and nongame-based activities in 3D virtual world. Journal of Educational Computing Research, 60(1), 74-103. doi:10.1177/07356331211022003

Wilke, A., Tricia van Rhijn, Squires, K., & Barton, K. (2024). Digital bonds: Exploring the impact of computer-mediated communication on parent–educator relationships in early childhood education and care. Education Sciences, 14(2), 123–123. doi:10.3390/educsci14020123

Yang, X., Wong, M. E., & Poon, K. K. (2024). Emergency remote learning for children with disabilities during the pandemic. Journal of Child and Family Studies, 33(2), 439–457. doi:10.1007/s10826-023-02760-4